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The charlotte and gwenyth gray foundation exists to improve and save the lives of all children impacted by batten disease and other neurodegenerative disorders.
Charlotte gray batten png. Doctors told the parents there was a 25 percent chance that their. Because so few suffer from this presently incurable and fatal disease there has been limited research focus and funding. In the grays case charlotte developed normally until she was about 2 and a half years old when she started showing signs of delayed speech and fine motor skills. While a new drug approved thursday.
Tell us more about this diagnosis. In 2015 charlotte then age 4 and gwenyth then age 2 gray were diagnosed with batten disease. The charlotte and gwenyth gray foundation in march of this year both of our daughters charlotte and gwenyth were diagnosed with late infantile ncl batten disease cln6. New parents gordon and kristen gray were overjoyed by every coo every smile and every milestone reached by their cheerful young daughter charlotte.
There is no treatment options or cure and would leave your children blind immobile and cognitively impaired and ultimately gone between the ages of six and 12. Meet a family whose two young daughters were born with a very rare brain disorder called batten disease. The charlotte and gwenyth gray foundation to cure batten disease. Learn the signs and symptoms of the devastating and incurable disease.
8 852 followers 359 following 158 posts see instagram photos and videos from the gray foundation curebatten. After a long journey of doctor appointments and second opinions she was diagnosed with batten disease in march 2015. Founded by two parents committed to finding a cure for batten disease to save the lives of their daughters the foundation recognizes firsthand the day to day challenges of living with a. Apr 27 2017 at 8 53 pm charlotte and gwenyth gray seen here in 2015 with their parents gordon and kristen gray have a rare disorder known as batten disease.
9 717 likes 6 talking about this 2 were here.
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9 717 likes 6 talking about this 2 were here. Apr 27 2017 at 8 53 pm charlotte and gwenyth gray seen here in 2015 with their parents gordon and kristen gray have a rare disorder known as batten disease. Founded by two parents committed to finding a cure for batten disease to save the lives of their daughters the foundation recognizes firsthand the day to day challenges of living with a.
